The Chronic Conditions Alliance
The Chronic Conditions Alliance was formed after the completion of the Health Partners Self Management Project in 2004. The Alliance met bi-monthly at SHOUT and was a network of community organisations working together to improve the quality of life for people living with a chronic condition.The last meeting held by the Chronic Conditions Alliance was in April 2006. At that stage the Alliance had developed a list of priority issues/concerns, a web presence on the ACT Division of General practices web site and had invited a number of guest speakers to meeting to provide information on specific topics.
On 26 June 2009 organisations who were involved in the Alliance previously were invited to meet again to gauge interest in reforming the Chronic Conditions Alliance, in what format, whether identified issues have changed and how to proceed.
The prevalence of chronic illness in the ACT is increasing significantly, as it is nationally and internationally. Self management is a partnership between people with long- term conditions and health professionals to manage treatment regimes, lifestyle issues and the physical, social and emotional adjustment to living with long- term conditions.
The Chronic Disease Management Unit of ACT Health provides a number of services to support people manage a chronic condition. The focus of the unit is improving the management of ACT residents with Diabetes type 2, Chronic Lung Disease and Chronic Heart Failure. More information can be found on the ACT Health website.
Today (2017) The Chronic Conditions Seminar Series (CCSS) is a cooperative venture by eight not for profit organisations:
ACT ME/Chronic Fatigue Syndrome Society
Epilepsy Association ACT
Mental Health Foundation ACT
Multiple Sclerosis ACT
Pain Support ACT
People with Disabilities ACT
RSI and Overuse Injury Association
CCSS provides current information on a range of topics relevant to people with chronic illnesses and their carers (see below). Free evening sessions are held on the third Thursday of the month (except December, January and the colder winter months of June and July) at the Pearce Community Centre. These public information sessions are aimed at a broad community audience including people who are not able to attend a day time session.
The eight organisations work collaboratively to help overcome their limited individual resources. Each CCSS information session is organised in turn by a different organisation which is also responsible for contacting and arranging the guest presenter. All CCSS presenters generously give their time and expertise without charge. SHOUT staff arrange the public advertising for each monthly session and the hire of the large meeting room at the Pearce Community Centre is provided free of charge by SHOUT.
By working cooperatively all not for profit organisations, including SHOUT, are able to further community awareness of services and assistance available to people with chronic illnesses and their carers.
Chronic Conditions Seminar Series – Schedule
Living a Healthy Life with Long Term Conditions – Course Schedule
ACT Chronic Conditions Strategy 2013-18
The ACT Chronic Conditions Strategy 2013-18 sets a direction for the care and support of those living with chronic conditions in the ACT over the next 5 years.